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Dravet syndrome

Discover Pinterest’s 10 best ideas and inspiration for Dravet syndrome. Get inspired and try out new things.
Silent Seizures! They occur SO often in kids with genetic syndromes

First of all, I am no doctor; I am a mom who busts my butt digging information out of people and the internet. Chelsea has a complex partial seizure disorder (more on that later). While I was talking to Chelsea’s neurologist and geneticist, both expressed the opinion that frequently, these types of seizures will go undiagnosed. That is so scary! The word “seizure” is scary, but I would rather be scared than have my kid continue to have seizures. So today’s blog will be: 1. How do we diagnose…

Just some warning signs ! Everyone please read on Epilepsy and learn about it because you never know when you can save a life! Also I want to start a go fund me to raise money for families who need travel expenses due to epilepsy . I would also like to start advocating at schools and teaching about epilepsy ! Thoughts on this and tips will be greatly appreciated !!

22 Likes, 1 Comments - Aisha Reed (@warriorsforepilepsy) on Instagram: “Just some warning signs ! Everyone please read on Epilepsy and learn about it because you never…”

Epilepsy... Tres has severe epilepsy and this is important to know for others who are not familiar with seizures

Epilepsy... Tres has severe epilepsy and this is important to know for others who are not familiar with seizures

Learn new information, gain new skills, and improve your confidence to better control your epilepsy and seizures. The infographic below provides facts about epilepsy as well as tools to help keep you safe.

Learn new information, gain new skills, and improve your confidence to better control your epilepsy and seizures. The infographic below provides facts about epilepsy as well as tools to help keep you safe.