I went from fit, healthy, happy, productive, and full of energy to struggling to get through each and every hour of the day; it’s hard not to mourn the woman I once was. It’s hard not to think of all the things I could’ve accomplished in a healthy body. But this is the hand I’ve been dealt, and I will make the absolute best of it. I may have to fight so much harder for my accomplishments, but it makes every success even more meaningful! 💜
Usable hours is the best description to use when you need to explain how your illness has changed your life. I wish this was listed on the SSDI application. Maybe those examiners might get a clue how impossible it is for some of us to work when we can't even shower every day because it uses up so much of our available energy vs. Usable hours.